This is my story
this is my song
praising my savior
all the day long
- Perfect submission, all is at rest,I in my Savior am happy and blest,Watching and waiting, looking above,Filled with His goodness, lost in His love.
This is my story
this is my song
praising my savior
all the day long
I've sung this song a thousand times this last week in a stupor of sadness & tears pouring down my cheeks & falling on my precious baby's face... trusting that Jesus is my rest, He is my safe place, I will trust in Him, I will not falter. Hymn after Hymn has keep me going.
{Love Like a Hurricane Continued}
{Love Like a Hurricane Continued}
The next few days following birth are a blur of pain filled
with a TON of confusion that might clear later. But I just remember insane physical
pain, finding out they didn’t give me the 24 hour pain meds duramorph I was
suppose to get in surgery to have a 24 hour of relief. So once that epidural
wore off I was in level 10 pain again. The nurses didn’t believe me or if they
did they didn’t know why I had so much pain. You think they would chart this
stuff better. I begged for pain relief for days. It never really got under
control completely but I started to get a little relief sometimes.
At one point they finally hooked me up to a drip of morphine
& I had to push this little button every 10 minutes to release the drug.
UMMM how stupid is that. I’m in pain, completely exhausted from not sleeping
for over 36 hours, laboring for two days, ending in an emergency c-section -were
they forget pain meds, and now I have to wake myself out of a daze every 10
minutes or I’ll wake in shrieking pain again… You would think there would be a
better way? It took 80 min of dripping to get enough in my system that I wasn’t
about to die & then I think I drifted with the administration of ambient.
I remember wanting to cry & sob for my baby. But I
couldn’t physically cry from the pain. Where was he? Where was my baby? I’d had
a baby right? Was I still pregnant? Did he die? Am I alone? This isn’t right, I
feel so detached, what’s he look like again? Who am I? Who is he?
I got reports like- his blood sugar level dropped
dangerously low. We must give him formula…another thing not in my birth plan-
but Ok. His resp rate out of control- he can’t breath right, his blood count
off…. And on & on & on & on
Confused, pain -riddled ,broken me.
At one point they wheeled mateo into my room & I was
overjoyed. They placed him naked in my arms & said try to nurse it might
help him. And they left… lol. WTF. I had no clue what to do. But I’d seen
Stephanie & Libby both nurse & had some idea. It was successful!!!!!!!
He did a great job. What a sweet little man! I was so happy. I slept in &
out of consciousness with his sweetness in my arms & it was all worth it. I
awoke 3 hours later & they came to take my baby away. They explained he had
gotten his blood results back & he was sick.
The next few days & nights were & still are a blur
of intense pain & no changes for me. 24 hours after my surgery they
insisted I just HAD to stand up & get my catheter out. I had to attempt to pee
on my own again. I had to learn how to care for my incision. I HAD to take a
shower and I had a complete & total breakdown. The nurse was not understanding. She was annoyed with me. No
one really believed how much pain I was in. None of them knew what I was going
through with the intense pain, lack of medicine, & infected uterus.
I remember the nurse just being at the end of her rope with
me & stated firmly it was time to take the shower & she sat the towels
down on the table & left. I was in a panic as I stepped hunched over in
pain toward the tiny cramped bathroom terrified of taking the bandage that held
my guts together off. Scared of the pain & what I would find underneath I
called Jessica for support. She came & helped me strip down & get into
that awful shower. She got the water started & tried to help me but it was
beyond help. I was just sitting there in shock terrified as I started to unwind
the bandage & wait for the sting…. Oh and it came ( the nurses told me it
wouldn’t hurt- they said it wouldn’t sting.. but I knew better- and I was
right) HOLY HELL that stang & that was the end – I went into total shock. I
was incapable of moving. I sat in the shower chair hunched over & shaking
begging for Nate. Nate swept in & saved me. He got as much in the shower
with me as he could ( it was SOOO tiny) & proceeded to wash my damaged
mangled body & sooth me with his words. He washed my legs & arms &
body & hair & ran conditioner through my snarled hair. As I held onto
the rail for dear life. What a humiliating experience. Not to be able to even
care for ones own basic needs. To be so vulnerable & ugly in front of the
person you love most. I will never be able to tell anyone how much that moment
meant to me & how much my husband is the gift from God his name means. He
rescued me- Jesus rescued me through him directly. I saw Jesus in his eyes, his
touch, his kindness, his soothing reassurance. I could not have done this
without him. He is a rock in my life he is THE human rock in my life. He was
made for me!
After this I had to stand. That part was very hard. The
incision felt terrible. Tons of aching pain from it & I was so scared it
would just rip open. But of course the staples were holding that together. They
said the weird shocking-stinking sensation was the nerves firing & having
no place to connect. They were trying to relearn where to go? Isn’t that just
insane? They cut your nerves open & they find a way back together. Kind of
a miracle. No one has to tell them what to do they just painfully do it. We are
truly wonderfully made.
Once I was on my feet (although I really was not walking per
say more like hunching & skooting) the insanity of my crazed motherdom
began.
I remember once I was mobile I was determined to see my son
& hold him. I wanted to nurse him. I was scared to death he was going to
die from not eating. He still had not had FOOD! He was sustained by an IV with
glucose?????? Do you know how many nightmares I had when I was pregnant that my
baby died because I didn’t feed him???????? My nightmares were becoming real
life. I made trip after hunched painful trip to the nicu to hold & rock &
and sing to him. All the while
begging to nurse him.
They wouldn’t allow me to nurse but I continued to beg each
& every time.
It seemed as though he had a serious issue with his respiratory
rate. They told me the number on the monitor needed to be below 60 for me to
nurse or he could aspirate (meaning suck the milk into his lungs- a very
serious issue) His was usually up in the 90’s & 100’s!!! SCARY! In my
confused state I don’t really think I understood how sick my baby was. I just saw all these doctors &
nurses as obstacles I needed to get around to save my baby. I’m sure they all
had an eye on me. I was the crazy mom! Lol. So Each time I begged for a number
lower. Oh if it’s below 70 can I please? If it’s below 80 can I please? Lol.
And over & over again.
Nate & I would long for our son day & night. Every
three hours we would head to see him chanting “ I sing you to me teo” (from the
movie Australia when the little boy always says that line.) It soon became our
thing. “I sing you to me!!!!!!” It was very true as well because I spend hours
singing to my darling. Hymn after Hymn after Hymn.
So I would stalk the halls all hours of the day & night
blurring reality into dreamland. At one point I chucked to nate as I explained
to him that I was a wounded mother panther stalking the caves to find rescue my
cub. Then I growled… lol.
Day & night for I’m not sure how many days.
Some really lovely things I do remember are
Nate giving our son his first bath & I got to help!
Nate holding
& singing to our baby
Me holding & rocking & singing to him
Changing his first diaper
Taking the first photos
Meeting grandpa & a few of our friends
Sweet hours with Jesus pouring his hope into my heart
Getting to nurse this one time when his rate was low enough-
it didn’t work but they let me come back later & it did work with a nipple
shield & it was wonderful!
I think after about 4 days things started to get a little
better with me. At least I was becoming more aware of my surroundings &
what was going on. I remember talking to the doctor for the first time saying
we have such a sweet calm little baby! And he looked at me seriously & said
I don’t think your son is calm he’s just very very very sick. For the first
time I realized how sick my baby was. He had an infection in his blood???? His
whole body was under attack!
Nate & I started writing down questions we had. We were
so confused from the blur we didn’t really understand what was going on. We
came to find out that I had corio an infection in my uterus & it spread to
the placenta & then into teo’s blood in the womb…. Very probably from the
high leak of water breaking 30 hours before I delivered. That blood was then
infected throughout his whole body leading to sepsis. The bacteria had been
found from blood draws done at birth…just a day or two after but our doctor had
foreseen the issue & had saved our little boy by starting him on a
multipurpose antibiotic within hours of his life. He switched the anti biotic to the best one for the bacteria
mateo had after discovering exactly what it was.
I remember bawling & sobbing all over the place in the
nicu when he told us the fatality rate was quite dangerous in those first three
days. (luckily this was day 4 that I found out my son could quite have possibly
died) if I had really understand that before I would have probably ended up in
the mental ward….
The next days turned into a living nightmare. Every morning
the doctor would burst into our room with more gone wrong. Mateo needs a
feeding tube, his glucose levels are low, he might have meningitis we need to
do a spinal tap, his resp is still terrible, another spinal tab the first one
produced nothing, amongst other issues. It seemed like we began to dread every
morning packing with more bad news.
Eventually after about a week I think things started to
swing upwards when his resp got below 70 for periods of time they let me begin
with nursing since I had begged so much & we had proved that when he was
held by me his resp always stayed lower. So I got my own little private kangaroo
room equipped with a rocker, mateo’s bicycle blanket & donut pillow for my
poor sore butt & he was moved to a diff part of the nicu for me to have
privacy. I went there every three hours to feed him for days. I would then come
back & pump, then nate would take that back to the nursery. I became a
dairy farm! Bright news is that I produced TONS of milk! Horray! Something
going well!!!!!!!
Finally we were faced with a hard decision on whether or not
to pursue more spinal taps or just treat for worse case scenario. HARD CHOICES
for two new inexperienced parents. Finally with loads of council, lots of
prayer, doctors opinion, me leaning heavily on Nate, and 6 needle holes later we
decided not to do any more spinal taps & to stay in Bloomington with IV
lines rather than be transferred to the childrens hospital in Peoria ….so that
we could continue to bond with him & feed him here. But then the very next
day the doctor changed his mind because he went home & did more research on
the matter & called his training doctor & a few doctors over in peoria
& said they really thought another spinal tap would be a good idea with
another doctor. One last attempt with someone elses hands… just in case.
So while I was nursing the following morning the new doctor
came in to do his spinal tap & I completely lost it. My overactive
imagination went into high gear of PANIC. I started freaking out like a crazy
personal all over again. I couldn’t stand the thought of my sweet little baby
hunched over into a ball held down by nurses while they poked him in the spine
with needles. I’ve never felt more mental pain. Nate rescued me & I half
ran down the hall to our room & slammed onto my knees on the floor by the
bed & started weeping & begging out to God for my sweet innocent child
to not feel pain and for God to guide the doctors hands to find the fluid. I
prayed that they find it & test it & for it to be negative. I prayer with
more fevor & hope that I had ever done in my ife. Nate dried my tears &
I climbed into the shower letting all the anxiety & sadness melt with the
water down the drain. Nate came back in brokenhearted & downcast. They had
not been able to get fluid. They would not be able to test. 3 more tries later.
9 needles in our baby’s back. We mourned together & asked God why his
answer was no yet again. We again choose to trust. Choose to believe that God
knows what is best. We will now proceed as yesterday & treat for
meningitis. Another whole week in the hospital. Another whole week watching my
bay have an IV, monitors, nursers, people stopping by our room all hours of the
day & night, cleaning, dining, doctors. Another week of crappy hospital
life. Another week just waiting to have a normal life. Sadness started to creep
in the corners & flood the floors of my heart.
Mateo was getting better every day. Suddenly we started to
look forward to our wonderful doctors news.
Mateo can come to your room,
mateo’s monitors can come off,
mateo looks like a healthy baby,
mateo can nurse exclusively,
mateo is doing great & gaining weight!
Amazing amazing amazing! Every piece of news was a God send.
Every piece of news was music to my heart. So why did my joy only last
momentarily? Why did it fade to sobs? Why am I laying on the floor crying out
my heart. Why am I broken now?
So here I am with a healthy looking baby just one last
mountain to climb…. a week to survive here. A week to look at this wretched IV
sticking out of my baby’s body. A week of bad food (which thankfully to many
amazing friends & family we have really been able to avoid too much of)
I am wrestling with God begging him for help & hope. I
am wrestling with the broken pieces of my heart, plans, and crushed spirit. I
am still fighting. I will not give up. I might need help & support to get
pieces off the floor. I think of switchfoot I dare you to move. I dare you to
lift yourself up off the floor.
I ask now that my family & amazing network of support
& love to continue to pray for my broken spirit & to lift me up in
prayer as I wrestle with the impending post pardon depression that hovers over
my head threatening to crush me at any moment. Pray that this week would fly by
& I would soon return to my home with a healthy happy baby in my arms. Pray
that I will get through this & my spirit will once again soar with the
eagles. Pray that my faith is renewed daily & my souls thirst for my
heavenly father will be quenched with his great love for me. Pray that I am
sustained by His almighty presence & that I will be healed from this
brokenness.
And these three remain even in me
Faith, hope & love.



















